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The InCARE project will contribute to the design  of a coherent and coordinated approach to the development of national long-term care policy and care services at local and regional level, by establishing socially innovative and participatory decision-making processes.

We work with care users, care provider organizations and policy-makers in Spain, Austria and North Macedonia to design, implement and scale-up innovative care services, with the ultimate goal of improving the well-being of older people and their families and increase their access to adequate and affordable care.

[Translated] Children and partners should never be forced to take care of their relatives. Everyone wants to be able to live their life the way they want. It’s great that a survey like this is being done. Thank you!

Woman, 67
Austria
[translated] I would gladly take care of my family members if there were not serious issues that put a big barrier between me and them. It’s easy to place the responsibility on the shoulders of family members when one needs support, but no one considers that the one who is supposed to be the caregiver may be rejected from this role. It is a particular situation, but unfortunately not unique.

Woman, 52
Romania

Thanks for keeping this in the public eye. No easy answers, I’m not sure I agree with all of mine today, but we must keep trying!!

Man
United Kingdom

I have Parkinson’s Disease and I dread what the future holds for me physically and mentally.

Woman, 75
Ireland
[Translated] I would urgently need support as far as my parents are concerned. They live alone, my father doesn’t speak at all anymore, can’t be reached by phone either, and my mother now and then. I think they both need urgent support, but I can’t talk to them anymore. My mother had a serious brain operation, I was never informed by any doctor, by any nurse, by any social worker…….what can be done, what is available, nothing at all….

Woman, 52
Austria

Start to talk openly [about] discrimination of elderly in Sweden which has been going on AT least 20 years by now [emphasis in original].

Woman, 52
Sweden
[Translated] I would not want my future to be in the hands of politicians but in the hands of qualified experts.

Man
Spain
[translated] Long-term care should be almost exclusively the prerogative of state institutions that should have the necessary infrastructure and resources to respond to the needs of older people and their families.

Man, 47
Romania
[Translated] In Belgium, we are immensely lucky that our health care system is based on solidarity. It is important that this continues and is even strengthened to avoid inequalities.

Woman, no age specified
Belgium
[Translated] There are now already too few caregivers and nothing is done about it! How will that be in 10 years ?!

[No gender specified], 68
Austria
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